Hi, my name is Paul Betney. I’ve had Parkinson’s Disease for over twenty years, but as you’ll hopefully see, I’ve never let that stand in my way. I sail tall ships, travel, climb, abseil, run and on occasion I’ve even been known to dress up as a pirate and fight with swords! Oh, and to throw myself out of planes too.
Parkinson’s does colour a lot of what I write about, but only because it’s taught me a lot of important lessons. For one thing it’s taught me that the future is very uncertain. At first I found that idea scary, but when I sat down and thought about it I realised that that uncertainty isn’t because I have this disease, that’s just life. None of us actually know what the future holds. That might seem even scarier, but I believe that, in the end, being given a reason to think about it has made me a stronger person.
In the end I’ve decided that an uncertain future is nothing to be afraid of. In fact, it’s something to get excited about, because it makes right now precious and it opens up a world of unexpected possibilities where anything can happen! Just because I don’t know what the future holds doesn’t mean it will be bad. And that’s an idea that has changed my world very much for the better.
A cure for Parkinson’s could easily happen in my lifetime and if it doesn’t then I’m certainly making the most of now! Either way, the disease is split milk, so there’s really no point wasting time crying over it. There’s far too much cool stuff to see and do in the world and I don’t want to miss any of it! Onward and upward!